This presentation from Neil Bennett who is the Director of Research at Action Duchenne.
In this talk, Neil discusses the challenges and opportunities in conducting genomic research from the perspective of Action Duchenne. He also shares insight into how Action Duchenne built a highly engaged and regularly updated patient registry.
This talk was recorded as part of the Demystifying Genomics For Patient Registries held on Thursday 11th July 2019 and hosted by Sano Genetics.
The event was held at Central Working in White City London and invited leadership from charities, patient groups and registries to attend a workshop exploring the challenges and opportunities in genomic research.
Neil Bennett: Introduction to Action Duchenne and building a patient registry upload image | |
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| Science & Technology | Upload TimePublished on 25 Jul 2019 |
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